Overview
Cystic fibrosis is a disease that causes mucus to become thick and sticky. Mucus is the wet substance inside the nose, throat, airways, and digestive system. Symptoms vary a lot from person to person. They can include coughing, trouble breathing, lung or sinus infections, and belly pain. This condition can affect people's ability to have children.
There is no cure for cystic fibrosis. It tends to get worse over time. But new treatments allow many people to live longer as adults. Treatments can include lung therapy, medicines, exercise, and diet changes. Some people with this condition need to take enzymes and vitamins.
Living with cystic fibrosis can be hard. But many people learn to manage it well. You can learn to do self-treatments. Seek and accept support from others with cystic fibrosis and those closest to you.
What are the symptoms of cystic fibrosis?
Some common symptoms in a baby who has cystic fibrosis include a blocked small intestine, breathing problems, not growing or gaining weight, salty skin, and diarrhea. Other symptoms in children may include clubbing (rounding and flattening) of the fingers and growths in the nose or sinuses.
How is cystic fibrosis diagnosed?
Babies are tested for cystic fibrosis right after birth. The doctor may also notice the signs of the disease during a routine exam. If your child has a positive screening test or symptoms of cystic fibrosis, the doctor will order a sweat test and a genetic test.
How is cystic fibrosis treated?
Treatment depends on what kinds of health problems the cystic fibrosis is causing. It also depends on how your child's body responds to different types of treatment. Doctors usually recommend a mix of medicines, home treatment (including respiratory and nutritional therapies), and other specialized care to manage the disease.
Cystic fibrosis: When to call
Call 911 anytime you think you may need emergency care. For example, call if:
- You have severe trouble breathing.
Call your doctor now or seek immediate medical care if:
- You have wheezing or coughing that is new or gets worse.
- You have a fever.
- You lose weight or lose your appetite.
- You have severe belly pain or vomiting.
- You cough up or vomit blood.
- You start to urinate more often, are often thirsty, or have blurred vision.
Watch closely for changes in your health, and be sure to contact your doctor if:
- You have more trouble breathing than usual.
- You have constipation that is new or gets worse.