Angelica Jordan is driven, determined, ambitious and known for putting everyone else before herself. She has had a pacemaker since she was five years old, but never let it slow her down. In 2017, however, amid a rigorous work and school schedule, Angelica became ill from food poisoning. Her unfortunate bout with the foodborne illness led to a downward spiral of health issues, including being diagnosed with a rare disease called atypical hemolytic uremic syndrome (aHUS) and finding out her pacemaker had failed and needed to be replaced. With so much going on in her life, she knew she needed a lifeline, an outlet with individuals who understood her health issues. Below, Angelica shares her journey and the invaluable experiences she’s gained with the help of the Her Heart Support Network.
How did you learn about the Her Heart Support Network?
I wanted to get into something in my community because I was the only person in my family with heart-related issues. I needed that connection and support from others who understood what I was going through. After speaking with my cardiologist, David Schleinkofer, MD, PPG – Cardiology, he referred me to the Her Heart Support Network.
What are some of the barriers you experienced to a healthy lifestyle before joining the Her Heart Support Network?
The biggest challenge I encountered was finding out that I had heart failure. So, before I could even think of joining the program, I wanted to take the proper steps toward healing and recovery. Once that was under control, I felt I was ready to move forward with the Her Heart Support Network.
What were your hopes and expectations going into the group?
I wanted a community I could open up to without feeling like the odd man out. What I found was that we were all connected. We were all females with health and heart issues. It was nice to know others understood and were there if I needed help or advice. It was reassuring to be in a program connected to a hospital that could offer research-based evidence to help with what we were experiencing and going through.
How did the support group help you improve and overcome the obstacles you were facing?
It helped me slow down and process my emotions. There is so much emotion wrapped up in your overall well-being, and if you don't get that under control, it can take a toll on your health. Being a part of this group allowed me to examine those feelings with people who weren’t afraid to ask the important questions: What are you going through? How is this playing in your daily life? Are you taking time for yourself? Are you eating healthy and taking time for you?
Is there one thing that you felt like you wouldn't have been able to do without the Her Heart Support Network?
I was grateful for the unwavering support of this group. I was able to be completely open and honest about my experience and what I was going through. It was a judge-free zone. I also loved that it wasn’t just for me but for my mom as well. She may not have had a diagnosis or a heart condition, but she went with me to everything. She’s seen me through the ups and downs. These support groups and the information we get from them is beneficial to both of us. It wasn't just for me, but her heart health too. I don’t know if I, if we, would have had that without this group.
What are your goals for the future?
Well, with just having had open heart surgery on August 13th and starting back to school on August 25th, I’m trying to find my new routine and get back into the swing of things. Ultimately, however, my goal is to finish medical assisting school and eventually start a nonprofit for people with heart health problems. I also want to be more involved in the community. I know I have a lot going on, but I'm excited and ready to fly.
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Is there a part of the program that will continue to influence your life going forward?
The support! There is no question that the encouragement and camaraderie were invaluable, but I was also blown away by the providers who spoke and the information shared when we met. I still remember discussing one topic on the different medications people with cardiovascular diseases should or should not take and how important that awareness is to our health.
How has the support group impacted your quality of life?
Meeting so many diverse individuals of various ethnicities and backgrounds, who are all going through a different situation, has been a blessing. While we’re all on our journey and walking our path, the support group is unique in that it provides a safe space for all of us. We have the freedom to openly share our experience, giving others a glimpse into our personal stories and allowing us to learn from each other. It’s reassuring to know I’m not alone.
Because of your health issues earlier this year, do you feel the switch to a virtual support group amid the COVID-19 pandemic will make it easier to reach out for support, stay connected and accountable?
Yes, absolutely. I believe the virtual group will make it more convenient and safer for individuals who may be at risk. Also, while it’s not in person, I do think seeing another face or hearing someone else’s voice will go a long way in helping people feel connected and a part of a group, despite COVID-19.
What do you think made the support group successful?
I think the consistency of it was extremely beneficial. It’s such an excellent opportunity to connect with other women, creating strong relationships while having a positive community base. I also enjoy that loved ones and family members can attend. My mom came to a few meetings, and I’m glad she did. Even though she doesn’t have heart issues, she does have a heart, and it’s important to keep it healthy. This support group wasn’t just for me. It was for her too.
What could someone expect from the Her Heart Support Network?
You can expect an extension of your family. We’re all opening our hearts to the other members of the group. We talk about our journey and find common ground based on our experiences. Yes, we’re all there for our health and hearts, but it doesn’t make us heartless. We all want to be loved and supported. The support group did that for me, and it will do the same for you.
If someone was considering joining the Her Heart Support Network, what would you say to them?
Do it! Life is crazy, and there will always be a reason not to do it or something that gets in the way and psyches you out, but you owe it to yourself to make your health a priority. You can’t be there for the people you love if you’re not healthy. Don’t be afraid to take the next step. Say yes!
If you or a loved one is interested in joining the Her Heart Support Network and want to learn more, please click here. It is always free to attend, and you can be in any stage of life or diagnosis.
